Happy International Cochlear Implant Day!

Things I Will Never Take For Granted

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Ocean Waves Crashing at Block Island 2015
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A Seagull at Montauk 2015

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Conch Shell Simulating the Sound of the Ocean

 

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My Kanso Processor that turns me into a hearing person.  Poof!!!!!

A trip down to the shore just to listen to the waves crashing

Seagulls gliding through a blue sky, singing in their own unique language

Being able to hear the words, “I love you”

Walking through the woods and hearing the chatter of all the tiny critters and nature at its best

Celebrating a birthday and being able to hear the people I love sing the birthday song

Crickets singing their slumber song after a weary day

The heartbeat of the people and puppies I love

The intonation and emotion in someone’s voice and words

That clinking sound of two glasses and the words “cheers”

Doing my happy dance around the kitchen table to the tunes of my youth

Being able to hear the words “everything will be alright”

Hearing Auld Lang Syne at the stroke of midnight and knowing the world is rejoicing in the birth of a new year with me

Being able to talk on the phone and laugh and cry about life with friends and family

Being able to talk to my three-year-old grandson, and each of us being able to know and love each other through words

Just being part of the world around me and using all of my senses

How could the day go by without acknowledging the work of Graeme Clark who developed the “Bionic Ear”  and Chief Scientist,  Jim Patrick of Cochlear Corporation www.cochlear.com?  All these wonderful sounds would never be possible for me without their hard work and dedication to our cause.

 

 

Reflections On Being Deaf, Gray and Italian on the “eve” of my 70th birthday

Do you ever look at someone and try to imagine who they were as a child or as a young adult?

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Each of us has a story, with many chapters.  In a few weeks I will celebrate my 70th birthday.  For many of us, there are many versions of our “self” that include a younger version and the one that will always be in our minds.   But time does pass, and the older I get the more I realize how important time is.  Use it wisely.  It is the ultimate gift each of us is given.

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    New Rochelle High School Yearbook 1965

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    I think I was 18 in this picture.

On being deaf- If someone had told me in my youth that I would someday be totally deaf, I don’t know how well I would have handled it.  Over the years, I have struggled with this slow progression towards silence and the mindsets society has placed upon those of us who have trouble communicating with the mainstream.  Like most people with hearing loss, I have navigated my journey through rude store clerks, discrimination in the workplace and even jerky people who we thought were sensitive and above treating us like secondhand citizens.

But there is an upside to this experience for sure.  Strangely, I have experienced my greatest growth because of this experience.  Losing my hearing has made me more sensitive to the plight of those on the outskirts of society, it has humbled me and made me really think about what someone else’s journey may be like.  It has also made me determined to complete whatever goals I choose despite being deaf.

In the silence, I heard my own voice and I began to write and publish work.  In my upcoming book, Living In The Color Magenta, I compare going deaf to  smothering and drowning.  That is what it always felt like to me. Going down, no one hearing you and having no voice.  I have said it before, and I will say it again.  If it weren’t for the Hearing Loss Association of America www.hearingloss.org over the last more than 25 years, I don’t know how well I would have fared.  This organization gives people like me a place to go to advocate and share with others in our journey.  Hearing loss is isolating, and like many others I have tremendous respect and gratitude for their work.  This organization and the love of my family gave me courage when I really needed it. We need to always pay it forward.

I am very lucky to be living in an era where there is something called a cochlear implant.  Helen Keller, Thomas Edision, Beethoven and so many others were not.  Almost every week someone approaches me and asks me about this miraculous operation.  I can wake up deaf, and put on my implants and be part of the hearing world.  For this, I will always be grateful.

1012 About gray (grey) hair-I remember finding my first gray hairs when I was 26 years old and pregnant with my first child.  I was mortified.  How could I already have grays?  My hair was very dark brown, and I was still wearing a “Cher” hairdo with bangs and long dark tresses.  The steely grays really stood out.  Over the next 40 years, I went from dark brown to light brown, auburn, blonde and platinum.  One day after being sick and not being able to make it to the colorist, I examined my shimmery grays showing through at the part and I just said, “I’m not doing this anymore.”  I kind of liked that my natural pearly shade matches best with my dark Italian coloring, and it was very liberating to accept my new look and older self.  

To each his own.  I see many women ditching the bottle and feeling confident enough to be  comfortable with their changing looks.  Even my colorist told me in recent years, “You actually look younger with your own natural hair color, even though I lost a customer.”  I appreciated that.

But growing older is about so much more than gray hair.  Time is passing and we are becoming older and more vulnerable.  There’s a greater chance for serious illness or a fall.  That sometimes  scares me.  We lose lots of people we care for and love. These losses are profound.

I have always tried to be there for my children.  I think every parent always feels they want to help their children if there is a crisis for as long as they live.  But somewhere along the way, the tables turn and our kids become our strength.  It’s beautiful to have wonderful children,  but kind of shocking to witness this shift.

On being Italian- I will always be grateful for my strong Italian roots.  Being the daughter of an immigrant parent allowed me to understand the plight of so many generations who have come to the U.S.  My parents gave us a strong Christian faith, my Italian-born father’s love of opera and his garden were inspiring.  My mother’s binding efforts to give us a traditional, strong family life complete with ethnic foods and rituals.  Christmas, Easter Sunday, faith hope and patriotism… all of these were true gifts.

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Mom with all seven of her children
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Mom making her famous lasagne
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With my parents, five of my six sisters and brothers
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Easter Sunday
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With 3 of my 4 sisters a few years ago celebrating St. Patrick’s Day

A few more observations-

Sometimes I can still hear my mother’s voice– At this stage of my life, I look so much like my mother, I almost expect her to answer back when I look in the mirror.  My mother made it through some pretty tough stuff.  As a child, I always felt she was so strong it was almost intimidating.  But somehow, that shy little girl I used to be inherited some of her resilience.  I am grateful for that gift.  I recently was hospitalized after a fall and in serious condition.  As I looked up and saw IV attached to one arm, a nurse taking blood from the other, while one nurse waited to take my temperature and blood pressure, I heard words like sepsis, 104 fever, put her in cardiac care, etc.  Was my life in danger?  How would my mother handle this?  Suddenly, I could hear her firm voice speaking to the grim reaper saying, “I’m not going anywhere!”  So I repeated that phrase in my mind and it gave me courage. I’ve had these moments before, andI suspect I will have them again.

On fathers and daughters- Fathers definitely have a lot to do with how a woman will see herself as worthy and lovable.  I was lucky to have a father that instilled that in me and a good husband who gave that gift to his daughters.

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On being in love- I’m glad that I have loved and been loved.  Even though it hurts like hell when you lose someone, it is an experience to not be missed.  It is one of the greatest gifts in life. No one can ever take that away from you.

Family- It’s all that matters.  Period.  So glad my daughters are not just sisters, but they have always been best friends.

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Birthday parties

 

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Vacationing in Sag Harbor 2015

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On being a grandma- There is nothing like it!  Love this little boy.  I want to watch my grandson grow taller than me, watch him fall in love for the first time, hear his stories and keep that special connection we have forever.

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On dogs- they really are nicer than people 🙂

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Time-  It all comes down to time well spent.  How have you spent your time today?  My kids told me they are holding me to living to 100 years old, and that’s 30 more years of good living for this deaf, gray and Italian lady.  I’m sure there will be many more life lessons.  I’m ready.

 

Happy Birthday to me!   Cheers!

 

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